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Castlefin schoolgirl Kayleigh Carlin - who suffers from a rare condition that means she can’t be exposed to UV rays - hosted a golf classic at Ballybofey and Stranorlar Golf Club on Friday.
The classic was arranged to raise funds for Action For XP and St Mary’s National School in Castlefin.
Five-year-old Kaleigh, the daughter of Adrian and Lorraine Carlin, has xeroderma pigmentosum (XP), a condition that means her DNA cannot repair the damage from exposure to UV rays.
Action For XP is a support group in England who cater for 100 people with the condition and helped provide Kayleigh with a protective mask.
The St Mary’s NS, Castlefin pupil must be completely covered with a protective face shield, gloves and wear ultra-violet protective clothing when exposed to UV rays. Every two hours, she has to have factor 50 suncream applied.
The condition is estimated to affect around one in one million people, but Kayleigh is the only person in Ireland who has been diagnosed.
St Mary’s NS principal Sharon Murray, whose endeavours have helped install protective measures at the school, was present at Friday’s golf classic, for which Finn Valley Harvesting and McElhinneys were the gold level sponsors.
The team of Anthony McCormick, David McGlinchey, Paddy Kennedy and Hugo McCormick were the winners, amassing 106 points.
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