All the updated news related to Rosaline Callaghan

All the news related to Rosaline Callaghan updated in real time

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Local News

Hugely successful Amyloidosis conference

Speaking at the 'Emerging from the Shadows' conference on Amyloidosis, co-organiser, Rosaline Callaghan, whose family is from Burt in Inishowen, said the team behind it was ''absolutely thrilled we have pulled off this historic, international event ...

01 Jun 2022 at 17:45

Local News

Thanks from Attr Amyloidosis All Ireland Support Group

The Attr Amyloidosis All Ireland Support Group, said it was “thrilled and relieved” the life-saving drug, Patisiran, had been approved for patients in the Republic of Ireland. Speaking to Donegal Live, Rosaline Callaghan, who sadly lost her father,...

15 Jul 2021 at 20:45

Local News

BREAKING: Life-changing Amyloidosis drug approved

The life-changing Amyloidosis drug, Patisiran (Onpattro®) has today been approved for patients living in the Republic of Ireland. The drug is available to people with an Amyloidosis diagnosis living in Europe, Britain and the North of Ireland but,...

09 Jul 2021 at 19:02

Inishowen MD

Proven Amyloidosis treatment not available in Ireland

Rosaline Callaghan, who lost her aunt, father and cousin, all three of whom were from the Inishowen village of Burt, to Amyloidosis, is now part of the rapidly expanding All Ireland ATTR Amyloidosis Awareness organisation. The group was due to ...

08 Oct 2020 at 11:43

Local News

Donegal support for Amyloidosis Ireland fundraising drive

Members of the patients' support group Amyloidosis Ireland set themselves the ambitious challenge of walking one million steps throughout March. Such was the support for the challenge, the bar was raised to three million steps within a matter ...

01 Apr 2021 at 17:00

Local News

Amyloidosis group devastated at HSE's rejection of life-saving treatment

In what has been described as a “completely devastating decision” the HSE Drugs Group has rejected Patisiran for the treatment of hereditary transthyretin-mediated amyloidosis (hATTR). The HSE Drugs Group is the body which decides whether or ...

26 Feb 2021 at 16:00

Inishowen MD

Donegal Amyloidosis ‘devastating in all its full-blown fury’

Dr John Berk, an international expert based at Boston University said of Hereditary Amyloidosis: “It is devastating in all its full-blown fury.” Rosaline Callaghan is determined therefore to keep her campaigning focus on the denial of ...

14 Jun 2020 at 11:58

Local News

Life-saving amyloidosis treatment not on Government agenda

Patisiran, the proven life-saving amyloidosis treatment, has been left off the agenda of the National Drugs Group by the HSE's Corporate Pharmaceutical Unit (CPU), despite the efforts of the All Ireland ATTR Amyloidosis Awareness ...

10 Dec 2020 at 14:40

Inishowen MD

Donegal amyloidosis family experiencing 'localised pandemic'

The availability of a lifesaving Amyloidosis treatment on one side of the border but not on the other is having a devastating impact on one family experiencing a 'localised pandemic'. Speaking to Donegal Live, Rosaline Callaghan,...

12 Nov 2020 at 10:42

Local News

‘Genetic testing must be made available’ - Donegal Action Cancer Care

The eircode-denial of the gene-silencing drug, Patisiran, to Irish citizens with an Amyloidosis diagnosis, is being forcefully challenged by Donegal health activist, Betty Holmes. Patisiran, a proven treatment for Amyloidosis, ...

07 May 2020 at 12:01

Home

Donegal ‘people being left to die’ – Rosaline Callaghan

A woman who sadly lost three family members to Amyloidosis is angry lifesaving treatment is currently being withheld from those in Inishowen and wider Donegal with a similar diagnosis Former barrister Rosaline Callaghan’s ...

30 Apr 2020 at 12:29

Local News

Donegal disease inspires book

Author, Rosaline Callaghan, who sadly lost three family members to amyloidosis has launched her new book: 'Donegal Amy: a rare inherited disease from Ireland'. A former barrister, Rosaline's aunt, father and cousin, died ...

08 Jun 2022 at 15:30

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