All the updated news related to ATTR Amyloidosis Awareness group

All the news related to ATTR Amyloidosis Awareness group updated in real time

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Local News

Speaking at the 'Emerging from the Shadows' conference on Amyloidosis, Professor Julian Gillmore, Head of the National Amyloidosis Centre in London, outlined several new treatments for the disease. Among these was CRISPR/Cas9-base gene editing. ...

28 May 2022 at 20:07

Local News

Life-changing Amyloidosis drug approved

The life-changing Amyloidosis drug, Patisiran (Onpattro®) has been approved for patients living in the Republic of Ireland. The drug was already available to people with an Amyloidosis diagnosis living in Europe, Britain and the North of ...

16 Jul 2021 at 11:45

Local News

Amyloidosis group devastated at HSE's rejection of life-saving treatment

In what has been described as a “completely devastating decision” the HSE Drugs Group has rejected Patisiran for the treatment of hereditary transthyretin-mediated amyloidosis (hATTR). The HSE Drugs Group is the body which decides ...

26 Feb 2021 at 16:00

Local News

Life-saving Amyloidosis treatment on HSE agenda

The application for Patisiran, the life-saving Amyloidosis treatment, is on the agenda of the May meeting of the HSE Drugs Group. The HSE Drugs Group decides whether or not the Government will fund a medicine through the public ...

02 May 2021 at 14:00

Local News

Life-saving amyloidosis treatment not on Government agenda

Patisiran, the proven life-saving amyloidosis treatment, has been left off the agenda of the National Drugs Group by the HSE's Corporate Pharmaceutical Unit (CPU), despite the efforts of the All Ireland ATTR Amyloidosis ...

10 Dec 2020 at 14:40

Local News

Lifesaving Amyloidosis drug receives unanimous support

Donegal County Council has unanimously supported a motion to make the life-saving Amyloidosis treatment, Patisiran, available in the Republic. The motion was proposed by Cllr Terry Crossan and seconded by Cllr Albert ...

17 Jun 2021 at 16:15

Local News

Donegal Action for Cancer Care put Amyloidosis top of agenda

The life-saving Amyloidosis drug, Patisiran, was on the agenda when the Donegal Action for Cancer Care (DACC) group met Health Minister Stephen Donnelly. The online meeting, which also included Minister Charlie ...

06 Jun 2021 at 13:48

Local News

"Why are Donegal people being treated differently?" - Councillor

The failure to make the life-saving treatment Patisiran available to people in the Republic with an Amyloidosis diagnosis is to be highlighted at Donegal County Council's May plenary. Inishowen councillor ...

27 May 2021 at 12:30

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