All the updated news related to patisiran

All the news related to patisiran updated in real time

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Local News

Hugely successful Amyloidosis conference

Speaking at the 'Emerging from the Shadows' conference on Amyloidosis, co-organiser, Rosaline Callaghan, whose family is from Burt in Inishowen, said the team behind it was ''absolutely thrilled we have pulled off this historic, international event ...

01 Jun 2022 at 17:45

Local News

Donegal's first Patisiran recipient

March 10, 2022 was a day of enormous significance for Mary McAnea. That was the day she became the very first person in Donegal to receive the revolutionary amyloidosis treatment, Patisiran, in Tallaght Hospital in Dublin. Mary was eventually ...

02 Jun 2022 at 10:15

Local News

Donegal woman's revolutionary Amyloidosis treatment

Milford's Barbara McBride is only the fourth person in the Republic of Ireland to receive the revolutionary amyloidosis treatment, Patisiran. Speaking to Donegal Live following Saturday's international amyloidosis conference 'Emerging from ...

01 Jun 2022 at 22:08

Local News

Lifesaving Amyloidosis drug available from October 1

The life-prolonging Amyloidosis treatment, Patisiran, will be available in the Republic of Ireland from October 1. According to Rosaline Callaghan of the All Ireland ATTR Amyloidosis Awareness organisation, the Managed Access Protocol for ...

17 Sept 2021 at 12:08

Local News

Thanks from Attr Amyloidosis All Ireland Support Group

The Attr Amyloidosis All Ireland Support Group, said it was “thrilled and relieved” the life-saving drug, Patisiran, had been approved for patients in the Republic of Ireland. Speaking to Donegal Live, Rosaline Callaghan, who sadly lost ...

15 Jul 2021 at 20:45

Local News

Life-changing Amyloidosis drug approved

The life-changing Amyloidosis drug, Patisiran (Onpattro®) has been approved for patients living in the Republic of Ireland. The drug was already available to people with an Amyloidosis diagnosis living in Europe, Britain and the North ...

16 Jul 2021 at 11:45

Local News

BREAKING: Life-changing Amyloidosis drug approved

The life-changing Amyloidosis drug, Patisiran (Onpattro®) has today been approved for patients living in the Republic of Ireland. The drug is available to people with an Amyloidosis diagnosis living in Europe, Britain and the North ...

09 Jul 2021 at 19:02

Inishowen MD

Proven Amyloidosis treatment not available in Ireland

Rosaline Callaghan, who lost her aunt, father and cousin, all three of whom were from the Inishowen village of Burt, to Amyloidosis, is now part of the rapidly expanding All Ireland ATTR Amyloidosis Awareness organisation. The ...

08 Oct 2020 at 11:43

Inishowen MD

Hundreds of people sign online petition to get potentially life-saving drug for Newbridge man

Over 700 people have signed an online petition to urge the Minister for Health and the HSE to make a drug available for sufferers of a rare hereditary condition. Newbridge-based photographer Pat Tinsley is 64 years of age and ...

11 Oct 2020 at 10:40

Local News

Fresh calls to make life-changing 'Donegal Amy' drug available

The residents' group in an Inishowen Amyloidosis hotspot has made an impassioned public plea for the drug Patisiran to be made available to “all who require this life-changing treatment”. In its social media post, Burt ...

09 Apr 2021 at 10:00

Inishowen MD

Government failure to approve Amyloidosis treatment ‘cruel’

“Cruel” was Donegal TD Pádraig Mac Lochlainn’s description of Government failure to approve the drug Patisiran for people with an Amyloidosis diagnosis. According to Mr Mac Lochlainn, Patisiran was a “proven ...

25 Jun 2020 at 13:00

'Should we have to beg for life-saving drugs ?' - Amyloidosis family member

Local News

'Should we really have to beg for life-saving drugs ?' - Amyloidosis family member

The residents' group in an Inishowen Amyloidosis hotspot has called on all of Donegal's TDs to support the campaign for the life-saving drug Patisiran [ONPATTRO®] to be made available to people living with ...

05 May 2021 at 12:17

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