All the updated news related to amyloidosis

All the news related to amyloidosis updated in real time

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Local News

Hugely successful Amyloidosis conference

Speaking at the 'Emerging from the Shadows' conference on Amyloidosis, co-organiser, Rosaline Callaghan, whose family is from Burt in Inishowen, said the team behind it was ''absolutely thrilled we have pulled off this historic, international event ...

01 Jun 2022 at 17:45

Local News

Amyloidosis 'Emerging from the Shadows

Speaking at the 'Emerging from the Shadows' conference on Amyloidosis, Professor Julian Gillmore, Head of the National Amyloidosis Centre in London, outlined several new treatments for the disease. Among these was CRISPR/Cas9-base gene editing. ...

28 May 2022 at 20:07

Local News

Donegal's first Patisiran recipient

March 10, 2022 was a day of enormous significance for Mary McAnea. That was the day she became the very first person in Donegal to receive the revolutionary amyloidosis treatment, Patisiran, in Tallaght Hospital in Dublin. Mary was eventually ...

02 Jun 2022 at 10:15

Local News

Donegal woman's revolutionary Amyloidosis treatment

Milford's Barbara McBride is only the fourth person in the Republic of Ireland to receive the revolutionary amyloidosis treatment, Patisiran. Speaking to Donegal Live following Saturday's international amyloidosis conference 'Emerging from ...

01 Jun 2022 at 22:08

Local News

'Be the Link'

'Be the link' is the motto of the forthcoming first ever World Amyloidosis Day, a day for connecting patients and carers, a day for connecting the amyloidosis community to the general public. The event, which is being spearheaded here by ...

24 Oct 2021 at 15:00

Local News

Lifesaving Amyloidosis drug available from October 1

The life-prolonging Amyloidosis treatment, Patisiran, will be available in the Republic of Ireland from October 1. According to Rosaline Callaghan of the All Ireland ATTR Amyloidosis Awareness organisation, the Managed Access Protocol ...

17 Sept 2021 at 12:08

Local News

Thanks from Attr Amyloidosis All Ireland Support Group

The Attr Amyloidosis All Ireland Support Group, said it was “thrilled and relieved” the life-saving drug, Patisiran, had been approved for patients in the Republic of Ireland. Speaking to Donegal Live, Rosaline Callaghan, who sadly ...

15 Jul 2021 at 20:45

Local News

Life-changing Amyloidosis drug approved

The life-changing Amyloidosis drug, Patisiran (Onpattro®) has been approved for patients living in the Republic of Ireland. The drug was already available to people with an Amyloidosis diagnosis living in Europe, Britain and the ...

16 Jul 2021 at 11:45

Local News

Knockout blow for 'Donegal Amyloidosis'

“There is now such great hope Amyloidosis will become a disease of the past.” This was the reaction of Burt's James Green speaking to the Inish Times about the successful results of a clinical trial for a potentially ...

08 Jul 2021 at 14:00

Local News

BREAKING: Life-changing Amyloidosis drug approved

The life-changing Amyloidosis drug, Patisiran (Onpattro®) has today been approved for patients living in the Republic of Ireland. The drug is available to people with an Amyloidosis diagnosis living in Europe, ...

09 Jul 2021 at 19:02

Local News

Terrifying' two-year wait for neurological assessments

Public patients in Inishowen with diabetes or amyloidosis will have to wait “years” for their crucial neurological assessment appointments, Inish Times can reveal. This dire situation is little better for ...

11 May 2022 at 09:30

Inishowen MD

Proven Amyloidosis treatment not available in Ireland

Rosaline Callaghan, who lost her aunt, father and cousin, all three of whom were from the Inishowen village of Burt, to Amyloidosis, is now part of the rapidly expanding All Ireland ATTR Amyloidosis ...

08 Oct 2020 at 11:43

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