All the updated news related to ATTR Amyloidosis Awareness

All the news related to ATTR Amyloidosis Awareness updated in real time

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Local News

Amyloidosis group devastated at HSE's rejection of life-saving treatment

In what has been described as a “completely devastating decision” the HSE Drugs Group has rejected Patisiran for the treatment of hereditary transthyretin-mediated amyloidosis (hATTR). The HSE Drugs Group is the body which decides whether or not the ...

26 Feb 2021 at 16:00

'Should we have to beg for life-saving drugs ?' - Amyloidosis family member

Local News

'Should we really have to beg for life-saving drugs ?' - Amyloidosis family member

The residents' group in an Inishowen Amyloidosis hotspot has called on all of Donegal's TDs to support the campaign for the life-saving drug Patisiran [ONPATTRO®] to be made available to people living with an Amyloidosis diagnosis. The move comes ...

05 May 2021 at 12:17

Local News

Life-saving amyloidosis treatment not on Government agenda

Patisiran, the proven life-saving amyloidosis treatment, has been left off the agenda of the National Drugs Group by the HSE's Corporate Pharmaceutical Unit (CPU), despite the efforts of the All Ireland ATTR Amyloidosis Awareness group. Speaking ...

10 Dec 2020 at 14:40

Local News

Hugely successful Amyloidosis conference

Speaking at the 'Emerging from the Shadows' conference on Amyloidosis, co-organiser, Rosaline Callaghan, whose family is from Burt in Inishowen, said the team behind it was ''absolutely thrilled we have pulled off this historic, international ...

01 Jun 2022 at 17:45

Local News

Life-saving Amyloidosis treatment on HSE agenda

The application for Patisiran, the life-saving Amyloidosis treatment, is on the agenda of the May meeting of the HSE Drugs Group. The HSE Drugs Group decides whether or not the Government will fund a medicine through the public health system....

02 May 2021 at 14:00

Local News

Lifesaving Amyloidosis drug receives unanimous support

Donegal County Council has unanimously supported a motion to make the life-saving Amyloidosis treatment, Patisiran, available in the Republic. The motion was proposed by Cllr Terry Crossan and seconded by Cllr Albert Doherty. Opening his ...

17 Jun 2021 at 16:15

Local News

Amyloidosis 'Emerging from the Shadows

Speaking at the 'Emerging from the Shadows' conference on Amyloidosis, Professor Julian Gillmore, Head of the National Amyloidosis Centre in London, outlined several new treatments for the disease. Among these was CRISPR/Cas9-base gene ...

28 May 2022 at 20:07

Local News

"Why are Donegal people being treated differently?" - Councillor

The failure to make the life-saving treatment Patisiran available to people in the Republic with an Amyloidosis diagnosis is to be highlighted at Donegal County Council's May plenary. Inishowen councillor Terry Crossan, who lost his ...

27 May 2021 at 12:30

Local News

BREAKING: Life-changing Amyloidosis drug approved

The life-changing Amyloidosis drug, Patisiran (Onpattro®) has today been approved for patients living in the Republic of Ireland. The drug is available to people with an Amyloidosis diagnosis living in Europe, Britain and the North ...

09 Jul 2021 at 19:02

Local News

Lifesaving Amyloidosis drug available from October 1

The life-prolonging Amyloidosis treatment, Patisiran, will be available in the Republic of Ireland from October 1. According to Rosaline Callaghan of the All Ireland ATTR Amyloidosis Awareness organisation, the Managed Access ...

17 Sept 2021 at 12:08

Local News

Life-changing Amyloidosis drug approved

The life-changing Amyloidosis drug, Patisiran (Onpattro®) has been approved for patients living in the Republic of Ireland. The drug was already available to people with an Amyloidosis diagnosis living in Europe, Britain and ...

16 Jul 2021 at 11:45

Local News

Knockout blow for 'Donegal Amyloidosis'

“There is now such great hope Amyloidosis will become a disease of the past.” This was the reaction of Burt's James Green speaking to the Inish Times about the successful results of a clinical trial for a potentially ...

08 Jul 2021 at 14:00

Years
2025

Related keywords
ATTR Amyloidosis Awareness group
HSE Drugs Group
Patisiran
hereditary transthyretin-mediated amyloidosis (hATTR)
Rosaline Callaghan
Alnylam Pharmaceuticals
Donegal
Inishowen
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